What is your charities name and Mission
FibroAction. Our mission is to raise awareness of the chronic pain condition Fibromyalgia Syndrome, partly through making accurate, up-to-date information more readily accessible.
Why do you use Facebook and which services do you use?
A lot of Fibromyalgia Syndrome (Fibro) sufferers use the internet and social media to interact with other people and learn about the condition. Facebook is useful for raising awareness of both the condition and our work. We can also help answer questions and provide information for sufferers and their friends or family. I’ve started up a couple of Facebook groups and we post links and answer question on those, and on other Fibro groups. We’ve also posted events and sometimes message group members if there is something in particular we want to publicise or ask for help with.
Have Facebook supporters done something wonderful for you?
We’ve had quite a few people volunteer to help us through Facebook which is pretty wonderful!
Do you consider Facebook an important part of your work online?
It’s certainly useful and I hope we help some people through using it.
Have you encountered any problems using Facebook?
I haven’t worked out how to get a UK registered charity listed on Facebook so we could benefit from Causes.
Have do you have any tips for other charities?
Facebook groups need to be monitored – you can’t just set them up and leave them. They need updating, discussions need encouraging and you need to ensure that discussions on your charity’s group are compatible with your charity’s ethos, e.g. as we’re very much about accurate & up-to-date information, we have to careful that the groups aren’t used to promote “quack” cures.
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Would your charity / Non-profit like to take part? If so follow this link for instructions: Facebook Charity Interview questions
